An Update and a Bit of a Vent

Hello Dear Friends. Are you still even checking this blog? Well, maybe this will just be for me and Chris (possibly the only 2 still reading).

There are a few reasons I haven't updated lately. One of the main ones is because there isn't too much to update on - we are in a limbo of sorts and so, stuck in this holding pattern, there aren't many changes.

As far as my healing and recovery go - things are back to normal for the most part. The incision has completely healed and has left a LONG scar along my tummy, but the width of the scar is like a line drawn with a pencil. The surgeon was very good at cleaning up his mess! I am not having any side effects anymore and am back to full activity. Sometimes I find it really hard to believe that is was only a few short months ago that I was so poorly, but I count my blessings that as bad as it was then, I am completely better now.

Along with the happiness of the full healing process, comes the complete frustration that nothing has changed at all. You'd think without one ovary, I'd have a least half of the cramps - but nope - they are still as bad as ever. I was under the impression that getting the Endo taken care of, it would solve those issues as well, but my doctor has informed me that, that is not the case at all. It is very frustrating! It usually brings me to tears every month thinking not only am I not getting pregnant, but I still have to suffer - so what was the surgery for anyway?!?!

As of now Chris and I are under instruction from the Consultant, Dr. R, to keep trying and see what happens. If nothing happens by Feb. then it is back to the Dr. M (the GP) to get a new referral to see Dr. R again - and move on from there.

Most of the time I am okay with the way things are headed with infertility. Most of the time I feel okay with the prospect that kids might not be in the picture. With so many other stresses in my life at the moment, I am ashamed to say, sometimes the infertility is the least of my worries. But then, of course, there are times where the pain of what I am going through cuts like a knife. I have eliminated most of my friends on Facebook that constantly complain about their kids (don't worry no one reading this is one of them) and now have taken to even hiding people who are constantly posting quotes or status updates about how "you've never known love until you're a mother." I know, I know it is a bit petty, but for me, it is what I have to do. It makes me feel like less of a wife, daughter, sister, and woman thinking to myself, "I must not love as much as I am capable because I don't have children."

As for life in general I am trying to put me first. It isn't easy at all. I am trying to get rid of the things in my life that cause me unneeded stress and heartache. This has, of course, made me re-evaluate a lot of things. Just the other day, a "friend" got me so sad that I had to stop myself and made a decision to eliminate that person from my thinking and life, for now.

I think of all that I have gone through in the last 3 years with regards to fertility and sometimes I am amazed at what Chris and I have dealt with and come through - and other times I am so saddened by the lack of support from family, friends and even strangers. I had a friend who came all the way from Utah to England and couldn't even pick up a phone to call me while she was here. Recently one of Chris' friends (who added me on Facebook) made me crack. She had a miscarriage and had fallen pregnant with her 2nd child very soon after. She complained 10+ times a day about how horrible pregnancy was and, "WHY did I do this to myself!!!!" When she had a very healthy baby she continued complaining about the baby - even going so far as to say, she hated him. I finally broke down and wrote to her (very nicely - not wanting to cause problems or hurt feelings) that, "I know how hard newborns can be, but maybe she should look at the positive - and remember there are women out there that would love to deal with what she was dealing with." I was then attacked by her and her friends because I said it and must not have any idea what she was going through because of my "unfortunate situation". My friends on Facebook who read my updates know more than my In-Laws (because they never ask) and the other day I signed up for a LDS infertility support group and, because I am not in Utah, no one has even bothered to say anything to me (but have to everyone else who has signed up at the same time). I cant wait to get home to Utah and spend some time with the people who HAVE supported me. Sometimes it just all gets on top of me.

I think what it comes down to is, I think about my infertility on a daily basis, and I suppose it affects me more than I think it does. But it is a process - I know of women who have been trying for 10+ years and still have sadness over it. I guess it is a matter of clearing my life of the things that don't make me happy and filling it with things that will fulfill me - no matter what happens with the infertility. I just keep praying I can deal with it - and not let it ruin me.

The Countdown Begins

Hello Friends…

Well, even though it has only been since November that I had my last surgery, I had completely forgotten how nervous I got beforehand.  I will be having my surgery next Tuesday and I am starting to get pretty nervous!

Next Monday I have to suffer through the unpleasantness that is “Bowel Prep” (I wont be sharing too many details about that!)  I have to be at the hospital by 7:30 – that is, if they have a bed.  I have to call an hour before hand to make sure there is a bed for me.  Chris got the day off (thanks to a co-worker who is going to work his shift for him that day).  He has the next day off too – and hey, lucky me I have a ride to the hospital!!  I made it quite clear to the nurse at the pre-op appointment that I got really sick after I woke up last time, so she is going to make sure that I get the meds to help that BEFORE the surgery, not an hour or so after.  Also, I have asked for some fluids in my IV after the surgery so I don't feel so dehydrated and get such a bad headache.  I am hoping these things coupled with prayers, blessings, good doctors, and SMALL incisions will have me sleeping safely in my own bed the night of my surgery.  Of course, I think I need to prepare that I  might have to stay the night – but I am trying to be positive! 

I am encouraged by the statistics I’ve found online for conceiving after the surgery.  Granted, they aren't TOO high, but they are much more positive than I was thinking when we got the dreaded letter at Christmas.

Since May 6th, 2007 we have been working with various doctors to “fix” me.  Thinking back I was so desperate to have answers.  When I finally got those answers they were not at all what I thought they would be, and they stirred up emotions that I wasn't prepared for. 

Some days I want to shout it out from the roof-tops, “I struggle with infertility!  Please be patient with me!!”  I want to explain to everyone why I avoid the “baby section” of the shops, why, at family parties, I “tune out” or walk away.  Why I cant watch a show with a baby born in it without shedding a few tears.  But, other times I just want to lay in bed and keep it to myself.  Often I have wondered what I did to deserve it?  Why things are so unfair!  But most days, I don't do either – I get up in my one-bedroom apartment and cope.  You’d be surprised at how many things you have to “cope” with when you are struggling.   I get reminders constantly that I don't have children, and at the end of the day it isn't so much what I am missing out on – but what Chris is, what my parents are, what my family is missing out on – and that is when I break down.  But, I keep going, and have for 3 years with the hope of a solution.  I realize that this surgery may not provide my broken body with a way to carry a child, but if it doesn't, then I continue to hope – and just keep going.

Thank you, thank you, thank you, for your love, prayers, and support.  They buoy me up when I feel down and they help me realize that Chris and I aren't alone.

Long Overdue (and not with a baby)

Well this entry is LOOOOOOOOOOOOONG overdue. As I sat down to try to sort out where to start and what to say, I realised I have quite a bit to say so this might be the first update of many.

I think I will do it in bullet lists to help make things a bit easier to understand:

* I recovered from my surgery quite well. No other complications (except scars that look like division signs).

* I found it surprisingly easy to come to terms with what the Doctor said about my future chances (30%).

* I was coping quite well, until we got a depressing letter a few days before Christmas that made things sound A LOT more bleak. I do believe the number 10% was used. It was awful to get right before an already difficult holiday, and put a different “spin” on how Chris and I celebrated the holidays.

* We finally got a new appointment for the end of January (this was an URGENT appointment made 2 months later – welcome to the NHS system). The Doctor was very nice and said I would need further surgery and a bit more serious. At the end of the day, my chances to conceive naturally are just as good as IVF (to me that is hopeful). They said to call in 10 days after the appointment to find out when the surgery was… now over a month later… we are still waiting (nearly 2 whole years since the whole process started – you’d think 2 months wouldn't make a huge difference – BUT IT DOES!)

I have so many things that I want to talk about, complain about, and be thankful about – but it is late, so that will have to wait.

I continue to be amazed at the support I get from dear friends and family. Thank you… your comments are not ever read without a tear in my eye and a prayer of thanks in my heart.

More later… and be prepared, BOY do I have some complaints to get off my chest!

P.S. I just added the option to "follow me" - because I post so irregularly it might help you to know what I actually write.

The Facts

I am thankful for all the prayers, happy thoughts, and support shown to me.

I am still recovering from the surgery, so this post will be basic – I will write the whole story soon!

The surgery was fine – it went off without a problem.

The doctor found stage 4 Endometriosis (the worst stage).

One tube was blocked, the other one he couldn't see.

The endo is so bad that the bowels are now pressing into my uterus.

To even try to fix it, it will take more surgery with another specialist.

After surgery the chances of me getting pregnant naturally is, at best, 30%

My doctor has put through an “urgent” referral to the next doctor and I should have an appointment date within 2-3 weeks.

I am in shock – it is not what I expected or could have prepared myself for.

I am trying to figure out how to live in a world full of children, knowing that I will probably never have one naturally.

I am healing well and will write more later.

D-Day

Well tomorrow is the big day and to say that I am nervous is an understatement. 

Up until today I was/am nervous JUST about the surgery.  It is my first surgery and being in England, away from home, it makes it that little bit more nerve-wracking.  My in-laws are taking me to the hospital and luckily it seems like a clean hospital.  Chris will be there as well and although I wish it were MY parents – I am thankful for the support that I have right now from them.

I get quite bitter when I really stop to think about it.  I think it is a mixture of nervousness/anxiety about the whole thing.  I think it is also that I have  several friends who have just had babies.  I think, as I clean up the house, get new pj’s and bathrobe, and get the loose ends tied up for work and church etc – this is how it would be if I was having a baby – and yet, this is all because I cant have a baby and when I think like that, the whole situation becomes horribly unfair.

Up until today I have been focused on the surgery and not at all preparing myself for AFTER the surgery – the results.  It’s finally hitting me – this could be the end of having a baby naturally.  Yes, we’ll move onto IVF next, but, I don't know why, it never crossed my mind that there could be something wrong.

It sounds silly doesn't it?  I am going in for surgery to see if something is wrong and I haven't let myself think that there might be.  Maybe it is self preservation of sorts – maybe if I had been thinking of it more, the surgery would be more difficult.

But I cant help thinking now, what if they find something wrong?  What if tomorrow I find out that my dream of creating and having a natural pregnancy wont happen?

And I know, you are all thinking – you still have IVF, adoption, IUI… but it just isn't the same is it? 

And that thought…. that scares me more than anything else that is happening tomorrow.

So It Starts

Hello Dear Friends. I think it is about time I updated this blog. Not too much has been happening in the last few months on the baby path. But, now that its November things will start going.

Tomorrow I go to the hospital for my pre-surgery check up. It is a general health check (I think!) Luckily I wont be having the surgery at Peterborough District (it is sooooo messy and dirty there) – it will be at Stamford, which is outside of Peterborough. I am starting to get more and more nervous as the time gets closer. It is my first ever surgery and although I am quite blessed that there aren't many possible complications – but, I still worry. Chris will be there with me and so will Pam, my mother-in-law. The only thing missing is my mom.

The surgery is called the lap and dye. What they do is make an incision in the right side of my abdomen, in my belly button (my BIGGEST fear – it makes me sick to think about), and then they insert the dye through my cervix. They will go in there with a camera and see if the ink goes through my fallopian tubes. They are also going to look to see if I have endometriosis – and if it isn't too bad they’ll get rid of it, if it is bad I’ll have to have more surgery.

I haven't even met the Doctor who is going to be performing the surgery (that makes me nervous as well). I have been working with the fertility nurse and haven't needed to see him so I don't know what to expect at all.

The most common side effect is shoulder pain. Strange hu?? Apparently when the pump my abdomen full of gas (so they can get a better view) sometimes it affects the diaphragm which has a nerve that is connected to the shoulder, which in turn causes horrible shoulder pain.

It is an outpatient surgery and hopefully I will be feeling good within a few days. I am not supposed to work for a week and cant lift anything heavy.

This will get me closer to the answer of the question: can I have a baby naturally or not? If the tubes are blocked then IVF is the next option. I am hoping that at least I get some answers so we know what way to go.

If my tubes are blocked then we are eligible to have a FREE IVF on the NHS (assuming that my weight wont hold me back – they are quite picky about letting overweight women have IVF – not cost effective apparently). If we do get IFV then we’ll do that while I am here in England, despite the fact that I might end up pregnant when I get to America (minus health insurance). We’ll just have to see how it goes.

Anyway, the surgery is on the 26th (Happy Thanksgiving!!). I am hoping that I don't stress out too much before then and that everything goes fine. If anything of note happens tomorrow at the Dr. I will post more.

In the meantime…. just thought you might find some facts about my Fertile Facebook Friends interesting:

29 of them (or their wives) are currently pregnant and within the last year 33 babies were born to my friends….. I guess you can tell I struggle with infertility – not many people would even notice.