Finally… a Date

Hello Lovely Friends! 

I just thought I would update on here that I finally have a date for my surgery.  They are going to do it on April 20th.

This surgery is to get rid of all the endometriosis that has spread through the womb, tubes, and bowels.  When I talked to the Dr. he said that they would try to go in as a lap (like they did before with 2 small incisions), but if the endo was too bad they would have to do “open surgery” and it would be as if I was having a C-Section.  I sure dont miss the irony in the fact that it will be like having a C-Section – I get the scar, just not the baby.

I am very nervous about it.  I will probably be in the hospital for a night at least.  I dread the hospital I am staying at.  It is dirty and dark and just pray that I will be safe (oh yeah, and that one of the very, VERY common “superbugs” that ALWAYS invade English hospitals skip this one on that day).

The other day we called Chris’ mom to see if she could take me to the hospital.  She said, she didn't know and that she would let me know later…  WHAT!??!?!  While I understand that she works, I also understand that she works right by the hospital at the same time I am supposed to be there.  What I don't understand is how she could even hesitate to take me when I am so far from home and it is such a major surgery (maybe I should remind her she might get another grandbaby out of this and if she is lucky one who is a boy so she’ll like it).  So Chris asked her the next day again and she said, yes she would take me as long as we went when SHE wanted to go.  I am trying to decide if it would be less hassle to just take the train.  I don't even dare ask her to bring me home – that might push her over the edge. 

The other day we were at her house and she was watching two of the grandkids (her choice by the way) and she walked past me and said, “KIDS who’d have them!!!” and walked away.  Things like that sting, and we only get it from family.  I had a sister in law who told me that, “J & P only spend time with you and are nice to you because they feel sorry for you.”  Who needs enemies!

And then, to top it all off, we found out Chris cant get any of the days that week off work.  They denied them all.  So I may just be having surgery by myself.  Getting the train there, having the surgery, and then the next day, getting the train back home.

Infertility is such a heartbreaking issue.  I read a sign on the wall of the doctors that said, “The only thing more painful then having a baby, is not having one.”  Chris is a huge support and so are my friends and family.  We skipped Mothers Day here in England and went away for the weekend – but just running away from it doesn't stop the pain. 

Hopefully this surgery will correct a lot of the issues that I have, and hopefully they wont have to remove any ovaries (they might if I start to bleed too much).

Any happy thoughts and prayers would go a very long way.

Hopefully I will update on here before I go in – and after reading this through, hopefully you can make sense out of the muddle!

Long Overdue (and not with a baby)

Well this entry is LOOOOOOOOOOOOONG overdue. As I sat down to try to sort out where to start and what to say, I realised I have quite a bit to say so this might be the first update of many.

I think I will do it in bullet lists to help make things a bit easier to understand:

* I recovered from my surgery quite well. No other complications (except scars that look like division signs).

* I found it surprisingly easy to come to terms with what the Doctor said about my future chances (30%).

* I was coping quite well, until we got a depressing letter a few days before Christmas that made things sound A LOT more bleak. I do believe the number 10% was used. It was awful to get right before an already difficult holiday, and put a different “spin” on how Chris and I celebrated the holidays.

* We finally got a new appointment for the end of January (this was an URGENT appointment made 2 months later – welcome to the NHS system). The Doctor was very nice and said I would need further surgery and a bit more serious. At the end of the day, my chances to conceive naturally are just as good as IVF (to me that is hopeful). They said to call in 10 days after the appointment to find out when the surgery was… now over a month later… we are still waiting (nearly 2 whole years since the whole process started – you’d think 2 months wouldn't make a huge difference – BUT IT DOES!)

I have so many things that I want to talk about, complain about, and be thankful about – but it is late, so that will have to wait.

I continue to be amazed at the support I get from dear friends and family. Thank you… your comments are not ever read without a tear in my eye and a prayer of thanks in my heart.

More later… and be prepared, BOY do I have some complaints to get off my chest!

P.S. I just added the option to "follow me" - because I post so irregularly it might help you to know what I actually write.

The Facts

I am thankful for all the prayers, happy thoughts, and support shown to me.

I am still recovering from the surgery, so this post will be basic – I will write the whole story soon!

The surgery was fine – it went off without a problem.

The doctor found stage 4 Endometriosis (the worst stage).

One tube was blocked, the other one he couldn't see.

The endo is so bad that the bowels are now pressing into my uterus.

To even try to fix it, it will take more surgery with another specialist.

After surgery the chances of me getting pregnant naturally is, at best, 30%

My doctor has put through an “urgent” referral to the next doctor and I should have an appointment date within 2-3 weeks.

I am in shock – it is not what I expected or could have prepared myself for.

I am trying to figure out how to live in a world full of children, knowing that I will probably never have one naturally.

I am healing well and will write more later.

So It Starts

Hello Dear Friends. I think it is about time I updated this blog. Not too much has been happening in the last few months on the baby path. But, now that its November things will start going.

Tomorrow I go to the hospital for my pre-surgery check up. It is a general health check (I think!) Luckily I wont be having the surgery at Peterborough District (it is sooooo messy and dirty there) – it will be at Stamford, which is outside of Peterborough. I am starting to get more and more nervous as the time gets closer. It is my first ever surgery and although I am quite blessed that there aren't many possible complications – but, I still worry. Chris will be there with me and so will Pam, my mother-in-law. The only thing missing is my mom.

The surgery is called the lap and dye. What they do is make an incision in the right side of my abdomen, in my belly button (my BIGGEST fear – it makes me sick to think about), and then they insert the dye through my cervix. They will go in there with a camera and see if the ink goes through my fallopian tubes. They are also going to look to see if I have endometriosis – and if it isn't too bad they’ll get rid of it, if it is bad I’ll have to have more surgery.

I haven't even met the Doctor who is going to be performing the surgery (that makes me nervous as well). I have been working with the fertility nurse and haven't needed to see him so I don't know what to expect at all.

The most common side effect is shoulder pain. Strange hu?? Apparently when the pump my abdomen full of gas (so they can get a better view) sometimes it affects the diaphragm which has a nerve that is connected to the shoulder, which in turn causes horrible shoulder pain.

It is an outpatient surgery and hopefully I will be feeling good within a few days. I am not supposed to work for a week and cant lift anything heavy.

This will get me closer to the answer of the question: can I have a baby naturally or not? If the tubes are blocked then IVF is the next option. I am hoping that at least I get some answers so we know what way to go.

If my tubes are blocked then we are eligible to have a FREE IVF on the NHS (assuming that my weight wont hold me back – they are quite picky about letting overweight women have IVF – not cost effective apparently). If we do get IFV then we’ll do that while I am here in England, despite the fact that I might end up pregnant when I get to America (minus health insurance). We’ll just have to see how it goes.

Anyway, the surgery is on the 26th (Happy Thanksgiving!!). I am hoping that I don't stress out too much before then and that everything goes fine. If anything of note happens tomorrow at the Dr. I will post more.

In the meantime…. just thought you might find some facts about my Fertile Facebook Friends interesting:

29 of them (or their wives) are currently pregnant and within the last year 33 babies were born to my friends….. I guess you can tell I struggle with infertility – not many people would even notice.

Appointment Update

Hello Friends.  I just had an appointment with Fiona and thought I would update the blog. 

Luckily, I decided to call Fiona and ask her about some of the goals we had set i.e. weight loss.  She called me back and told me that we would discuss it more at the appointment on Monday.  It was a good thing I had called because she had never told me when the next appointment was and I would HATE to miss it (she was really mean when we were just late).

Chris and I got to the appointment and I was really worried that all the hard work I’ve done as far as weight loss, would not be enough to have the surgery to find out what is wrong.

She weighed me first and having lost enough to get my BMI under the “danger” level (even if it was only by 1.0), Fiona said that Mr. R would “probably” do the surgery for me.

She asked me and Chris a lot of questions about our medical past, to see if there was anything that might put up a red flag – there wasn't.

She then turned to us and said, “You could have the lap and dye.”  Now, I realize that reading that it makes perfect sense and doesn't instil fear at all – but imagine hearing it, “You could have the lap and DIE.”  It took me a minute to figure out what she was talking about.  The Lap and Dye is where they put a probe into your belly button (or as they call it here, tummy button) and look around.  They look for endometriosis or any problem causing fibroids or cysts and then they inject the fallopian tubes with dye to see if they are blocked or not.  Here in England it is a day surgery and the person only stays at the hospital if they have any problems. 

Fiona told us that couples usually have a high fertility rate for the first 3 years in a relationship – after those three years the rate drops dramatically.  Since “officially” Chris and I have been TTC for 2.7 years we still have a few months left.  She told us that I was at a weight where it was “okay” to try again, but I am a bit torn about that.  I have worked so hard to loose the weight I have, and I just want to be a bit more healthy before I have a baby.  Plus the timing is all off…  if I were to get pregnant in the near future that would leave me heavily pregnant when my VISA for England runs out – I couldn't fly anywhere and if I got to the USA I wouldn't have any health insurance at all for when I was ready to deliver.  So, it is still going to be on hold for a bit longer.

Fiona then told us that if they go in and do the lap and dye and they find that the tubes are blocked then our only option at that point would be IVF.  She said they used to do a surgery to un-block the tubes but IVF has a lot higher success rates and is not a surgery, like the “tube un-blocking” would be.

At this point we have an appointment again in 2 weeks to discuss the procedure.

I am so pleased that things seem to be moving along – finally, some answers for us… and we are ready for them (as ready as possible), whatever they might be.

Its My Choice

Recently I have been hearing so much about the new Health Care plan in the US.  I have held my tongue and not written anything about it on my public blog for fear of the repercussions.  But, while I do agree with a need for basic health care for all, I really struggle with a Nationalized Health Care.  Let me explain why.

It has been over a year now that Chris and I have been seeing “doctors” about our issues and the run around we have had, I wouldn't wish on anyone.  All you have to do is read this blog and you’ll know what problems I’ve had – and it gets FRUSTRATING!

The other day I was going about my business and the next I was bent over in pain.  I knew I was ovulating and I often get cramps for a few days at that time (I know lucky me cramps twice a month) but this wasn't “usual” pain, this was cant breath, cant stand, feel sick pain.  I got into the bedroom and collapsed on the bed – not being able to move from the fetal position (ironic I know).  I laid there and thought – childbirth CANNOT be worse than this.  I was shaking and crying and finally decided to ask Chris to call the NHS call centre where they have you speak to a nurse and tell you where to go from there.  At this point I was very concerned that one of the lovely cysts had burst.  I spoke to the nurse and she said just to “take some pain killers”.  So I did – eventually the pain subsided.

Then I started to cry again – not from the pain but from the unfairness of it all.  If I weighed even 10-20 lbs. and walked into the nurses office for my fertility appointment – I would now be on a waiting list for surgery because according the the NHS “it would be worth it and cost effective”. 

You see the NHS doesn't do ANYTHING that costs them more money than it could.  If that means women giving birth in their regular PJ’s and sending them home before they're ready, limiting appointments to 10 minutes, using out dated equipment, having nurses do a doctors work, etc. then the do it.  It is all about money. 

I am a woman who is at the mercy of the NHS – they get to decide WHEN or IF I get to be a mother.  They have decided that even though I experience horrible pain for nearly 2 weeks of the month – I get to suffer because I am not skinny.

I understand that there are risks on operating on a bigger person – I get that – but let ME choose, let me evaluate the risks.

There are many things I cant fault the NHS for, in terms of my basic care – and it is nice not to think about how I am going to pay for things.  But in the back of my mind I cant help by think that maybe, just maybe if I were in America I’d have a baby in my arms or at the very least be pain free while trying to get there.